Rare Disease Day – EU Booklet
Ahead of the Rare Disease Day, the European Commission will publish a booklet celebrating the dedication and expertise of the European Reference Networks that make a tangible difference to the [...]
EJP RD: MOOC From Lab to Clinic: Translational Research for Rare Diseases
The French Foundation for Rare Diseases has announced the opening of a new facilitation window of the MOOC From Lab to Clinic: Translational Research for Rare Diseases on October 9th. This update [...]
Open Letter from ERNs to EU institutions and EU Member States’ governments
The ERN PaedCan has co-signed an open letter in which the ERN Network Coordinators and people living with a rare disease across Europe have asked Ursula von der Leyen (President of the European [...]
Course on Predisposition to Pediatric Malignant Diseases
Register today to the Course on Predisposition to Pediatric Malignant Diseases. Learn more here.
10th General Assembly of the European Reference Network for Paediatric Oncology
We are pleased to announce that the 10th General Assembly (GA) of the European Reference Network for Paediatric Oncology (ERN PaedCan) will take place virtually on Wednesday 23 November from 2:00 [...]
Workshop invitation: Rhabdoid tumours in clinic and research: From basic biology to the patient bed
EVENT INFO : Start Date: 5 November 2022 Start Time: 07:30 End Date: 5 November 2022 End Time: 16:00 Location: Charenton-le-Pont, France In this workshop, a state-of the-art overview on clinical [...]
EJP RD Training Workshop: “Genetic Biobanks for Rare Disease Research”
University Medical Centre Groningen (UMCG) and Fondazione Telethon (FTELE) along with other EJP RD partners are organizing an EJP RD Training [...]
Third Meeting of Children’s Hospital of Philadelphia (CHOP) with Aghia Sophia Children’s Hospital of Athens (Hybrid)
This meeting will take place on 20-21 May 2022 at Royal Olympic Hotel in Athens. The meeting will be held in hybrid format and registration for on-line participation does not have a deadline. The [...]
#ERNcare4Ua – ERN’s assistance in the Ukrainian crisis
All 24 European Reference Networks (ERNs) have launched a joint dedicated website and social media campaign to collect information to help Ukrainian patients with rare diseases for diagnosis, [...]
9th ERN PaedCan General Assembly
We would like to kindly invite you to the 9th ERN PaedCan General Assembly, scheduled to take place virtually on 9 February 2022. This virtual General Assembly is open to all members of the [...]
