News

The French Foundation for Rare Diseases has announced the opening of a new facilitation window of the MOOC From Lab to Clinic: Translational Research for Rare Diseases on October 9th. This update [...]

The ERN PaedCan has co-signed an open letter in which the ERN Network Coordinators and people living with a rare disease across Europe have asked Ursula von der Leyen (President of the European [...]

Register today to the Course on Predisposition to Pediatric Malignant Diseases. Learn more here.

We are pleased to announce that the 10th General Assembly (GA) of the European Reference Network for Paediatric Oncology (ERN PaedCan) will take place virtually on Wednesday 23 November from 2:00 [...]

EVENT INFO : Start Date: 5 November 2022 Start Time: 07:30 End Date: 5 November 2022 End Time: 16:00 Location: Charenton-le-Pont, France In this workshop, a state-of the-art overview on clinical [...]

              University Medical Centre Groningen (UMCG) and Fondazione Telethon (FTELE) along with other EJP RD partners are organizing an EJP RD Training [...]

This meeting will take place on 20-21 May 2022 at Royal Olympic Hotel in Athens. The meeting will be held in hybrid format and registration for on-line participation does not have a deadline. The [...]

All 24 European Reference Networks (ERNs) have launched a joint dedicated website and social media campaign to collect information to help Ukrainian patients with rare diseases for diagnosis, [...]

We would like to kindly invite you to the 9th ERN PaedCan General Assembly, scheduled to take place virtually on 9 February 2022.  This virtual General Assembly is open to all members of the [...]

Institut Curie participates in a new international MD-PhD program, EMERALD, that offers 42-months fully-funded positions for Medical Doctors who would like to pursue a PhD. The first call for [...]