webinars
ERN PaedCan Webinars
ERN PaedCan and its members offers a series of educational activities for Patients. Below you can find the upcoming Webinars as well as the recording of the past ones.
Guidelines
The ESCP Project
The ESCP Project is an on-going collaboration between ERN PaedCan and SIOP Europe’s Clinical Trial Groups (ECTG), aiming to develop approved clinical recommendations that reflect current best practices for each common childhood cancer type. The goal is to improve outcomes and increase childhood cancer survival, and quality of life by providing these benchmarks for best practice.
The ESCP Project is collating treatment pathways that reflect current best standards of care, defined by the collective European experts in each field. These expert-endorsed recommendations aim to improve access to best standard treatments for all children with cancer throughout Europe and hold the potential of reducing inequalities in childhood cancer outcomes across Member States. The intended use of these documents is to provide a written recommendation for best standard treatments and can be used as a benchmark where no national recommendations or clinical trial options are available.
Each of the ESCPs Guideline is written by the corresponding ECTG and revised and approved by the SIOPE Board.
Subsequent protocols provide important information to paediatric haemato-oncologists, patients, and families in situations where current standard best clinical practice is either unavailable or front-line trials are not accessible.
To help us understand the availability of recommended treatments and diagnostics throughout Europe, we encourage you to complete one of the surveys after you have consulted an ESCP. Two versions of each survey are available: one directed at National Paediatric Haemato-Oncology Societies (NaPHOS) and one targeting CCI-E (the European branch of Childhood Cancer International) member states and ERN PaedCan national contact points from the patient side (i.e. Parents, Survivors, Carers) who should be able to understand the guidance documents in order to be able to support families.
You can access the ESCP surveys below:
Watch the past ESCP Webinars to learn more about the project.
The following ESCP Guidance Documents are accessible below:
ESCP registry
Where front-line clinical trials are not open or accessible, these ESCP Guidelines provide an important benchmark of acknowledged treatment standards to paediatric haemato-oncologists, patients, and families and governmental bodies.
The ESCP registry has been approved by the ethics commission in Austria and is in the process of being implemented throughout the ERN PaedCan Members and Affiliated Partners.
ESCP Past Webinars
PARTNER Study
An international prospective observational study on paediatric patients with very rare tumours
The PARTNER study is a collaborative, European-level observational initiative dedicated to children and adolescents diagnosed with very rare tumours (defined as an annual incidence of fewer than 2 cases per 1 000 000 children).
It is promoted by the EXPeRT [European Cooperative Study Group for Pediatric Rare Tumors] and coordinated internationally by the Paediatric Oncology Unit of University Hospital of Padua, Italy [AOUP].
Key aims
Why this matters
Because each tumour type is extremely rare, individual centres often lack sufficient patient numbers to generate robust evidence. By uniting multiple centres and countries, the PARTNER study enables the aggregation of data at scale—making it possible to derive meaningful insights that can guide care for these rare conditions.
How it works
Visit the official PARTNER study website for up-to-date information on collaborating centres, data access and study documents:
Membership
How to become a member of ERN PaedCan
Membership applications can only be submitted in response to official calls launched by the European Commission for new members to join the existing ERNs. Currently, there are no open calls for new ERN PaedCan members. To learn more about the application process once a call is announced, you can refer to:
If you would like to be notified when a new call is published, please contact us at: ernpaedcan@ccri.at
Training and Twinning programme
The aim of the ERN PaedCan Training/Twinning Programme is to share knowledge and to stimulate collaboration between healthcare professionals’ members of ERN PaedCan.
ERN PaedCan Success Stories Testimonial Video
The objective of the Training/Twinning Programme is to reduce disparities in specific knowledge or gaps in expertise by facilitating the arrival of high-level expertise in paediatric oncology to health care professionals in widening countries.
Specific priorities that ERNPaedCan address, are:
- On-site training of paediatric oncologists, radiotherapists, surgeons in short-term stays of up to 2 weeks.
- Leading clinicians to learn specific methodologies with a particular focus on diagnostics, biomarkers and liquid biopsies.
Criteria for selecting individuals for exchange visits
Health care professionals employed in ERN PaedCan members Institutions in widening countries. Countries meeting the criteria: Bulgaria, Croatia, Cyprus, Czech Republic, Estonia, Greece, Hungary, Latvia, Lithuania, Malta, Poland, Portugal, Romania, Slovakia, Slovenia.
There are currently no open calls for the Training and Twinning programme. Stay tuned for the next call to be open in 2026.
Monitoring
Continuous Monitoring of ERNs
The Continuous Monitoring of ERNs, a process established in 2018 by the Member States, ERNs and European Commission, aims at evaluating the performance of ERNs and ensuring they are working towards their goal. Each year, all Full Members and Affiliated Partners of ERN PaedCan are required to participate in the Continuous Monitoring exercise that takes place the first from January to March.
Continuous Monitoring 2026
This exercise will collect the corresponding 2025 data on these indicators.
step 1:
One designated reporter submits the data in the DG Sante/European Commission platform directly on 2 indicators
• Link to the platform
• Download the guide for requesting access to the platform
• Download the guide for submitting your HCP data in the platform
Deadline: 20 February 2026
If you have any questions, send us an email.
ERN PaedCan Members Activity Overview 2024
The European Commission (EC) has introduced, in the current European Reference Networks (ERNs) grant, a set of indicators for all obligatory Work Packages.
The aim of the ERN PaedCan Members Activity Overview is to measure and document the participation and contribution of the members to all core activities of the network, to identify areas of opportunities for members to be more active in the network.
The ERN PaedCan Members Activity Overview consists of 10 activities that are monitored for each of the members of the network. Each activity was assigned a score based on effort and time investment, as fair as possible.
ORPHAcodes
ERN PaedCan, in collaboration with SIOPE and Orphanet, is working to develop harmonized ORPHAcodes for paediatric cancer.
Why are ORPHAcodes important for paediatric cancer?
All ESCP authors—mentors and mentees—were invited to participate in this exciting project.
The project to develop ORPHAcodes for paediatric cancer started in October 2024 and is still under development.