FULL MEMBERS
Healthcare Provider Member State
St. Anna Children´s Hospital & Children´s Cancer Research Institute Austria (ERN-Coordinator)
Healthcare Provider Member State Contact(s)
Ghent University Hospital (Pediatric Hematology-Oncology & Stem Cell Transplantation, Universitair Ziekenhuis) Belgium Dr Barbara De Moerloose, Melissa Bol
Hôpital Universiataire des Enfants Reine Fabiola Belgium Christine Devalck, Sarah Wambacq
UZ Leuven Belgium Anne Uyttebroeck
Cliniques universitaires Saint-Luc Belgium Bénédicte Brichard
Healthcare Provider Member State Contact(s)
University Hospital Brno Czech Republic Jaroslav Sterba
University Hospital Motol, Prague Czech Republic Karel Svojgr
Healthcare Provider Member State Contact(s)
Copenhagen University Hospital, Rigshospitalet Denmark Karsten Nysom, Schmiegelow
Aarhus Universitets Hospital Denmark Henrik Hasle
Healthcare Provider Member State Contact(s)
Kuopio University Hospital Finland Kaisa Vepsalainen, Pekka Riikonen
Tampere University Hospital Finland Olli Lohi, Mikko Arola
Turku University Hospital, The Hospital District of Southwest Finland Finland Päivi Maria Lätheenmaki
ERN PaedCanHUSOY (HUS Helsinki University Hospital + Oulu University Hospital (OYS)) Finland Jukka Kanerva
Healthcare Provider Member State Contact(s)
Hôpital Bicetre France Branchereau Sophie, Isabelle Fernandez
Hôpital Trousseau France Guy Leverger, Sabine Irtan,
Hôpital Universitaire Necker- Enfants malades France Christophe Chardot, Sabine Sarnacki
Institut Curie France Francois Doz
Institut d´hematologie et d´oncologie pédiatrique (IHOPE) France Pierre Leblond, Perrine Marec-Bérard
Institut Gustave Roussy France Dominique Valteau-Couanet, Gilles Vassal, Valerie Marechal
Fondation Ophtalmologique Adolphe de Rothschild France Gillaume le Henanff, Julien Gottsmann
Healthcare Provider Member State Contact(s)
Hannover Medical School Germany Brigitte Schlegelberger
Charité Universitätsmedizin Berlin Germany Angelika Eggert
Christian-Albrechts-Universität zu Kiel (CAU) Germany Martin Schrappe
Klinikum Dortmund GmbH Germany Schneider Dominik
Klinikum Stuttgart-Olgahospital Germany Stefan Bielack
University Children´s Hospital Tübingen Germany Ines Brecht
University Medical Center Freiburg Germany Brigitte Strahm
University Hospital Gießen- Marburg Germany Dieter Körholz
University Hospital Bonn Germany Gabriele Calaminus
Universitätsklinikum Erlangen Germany Axel Karow
Universitätsklinikum Essen Germany Uta Dirksen
Universitätsklinikum Augsburg Germany Michael Frühwald
Universitätsklinikum Frankfurt Germany Thomas Lehrnbecher
Klinkum rechts der Isar der Technischen Universität München und München Klinik Schwabing Germany Stefan Burdach
European Medical School Oldenburg – Groningen Germany Hermann L. Müller
Universitätsklinikum Hamburg-Eppendorf Germany Stefan Rutkowski
Universitätsklinikum Schleswig-Holstein Germany Thorsten Langer
Universitätsklinikum Aachen Germany Udo Kontny
Universitätsklinikum Düsseldorf Germany Arndt Brokhardt
Healthcare Provider Member State Contact(s)
“Aghia Sophia” Children’s Hospital Greece Antonis Kattamis
Healthcare Provider Member State Contact(s)
Semmelweis University Hungary Miklos Garami
Cental Hospital of Southern Pest National Institute of Hematology and Infectious Diseases Hungary Gergely Kriván
Healthcare Provider Member State Contact(s)
Children’s Health Ireland Ireland Cormac Owens
Healthcare Provider Member State Contact(s)
Department of Pediatrics-University of Milano-Bicocca/Fundation MBBM, at San Gerardo Hospital, Monza Italy Andrea Biondi
IRCCS Istituto Giannina Gaslini Italy Riccardo Haupt
Meyer Children´s Hospital Florence Italy Daniela Cuzzubbo, Camilla Rosa
Ospedale Pediatrico Bambino Gesú Italy Franco Locatelli, Angela Mastronuzzi
Policlinico San Matteo, Fondazione IRCCS Pavia Italy Marco Zecca
Azienda Ospedialiera di Padova (AOP) Italy Gianni Bisogno
AziendaOspedaliera Universitaria Senese Italy Alessandra Renieri
Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino- S.C. Oncoematologia Pediatrica e Centro Trapianti, Presidio Ospedale Infantile regina Margherita Italy Franca Fagioli
Azienda Ospedaliera S. Maria della Misericordia di Perugia Italy Christina Mecucci
Fondazione IRCCS Istituto Neurologico Carlo Besta di Milano Italy Francesco DiMeco
Fondazione Policlinico Universitario A. Gemelli IRCCS – Roma Italy Antonio Ruggiero
Fondazione IRCCS Istituto Nazionale dei Tumori Italy Maura Massimino
Healthcare Provider Member State Contact(s)
Children´s Clinical University Hospital, Riga Latvia Zanna Kovalova
Healthcare Provider Member State Contact(s)
Vilnius University Hospital Santariskiu Klinikos Lithuania Jelena Rascon
Healthcare Provider Member State Contact(s)
Stichting VU-VUmc Netherlands Anne Moll
EMC (All functions have been taken over by Princess Máxima Centre) Netherlands Michel Zwaan
Princess Maxima Center Netherlands Lenneke Schrier
Healthcare Provider Member State Contact(s)
Oslo University Hospital Norway Bernward Zeller
Healthcare Provider Member State Contact(s)
T. Marciniak Lower Silesian Specialist Hospital- Emergency Hospital (Wroclaw) Poland Jan Godzinski
University Children Hospital in Lublin (UCHL) Poland Jerzy Kowalzcyk
University Clinical Center Gdansk Poland Ewa Bien
University Children’s Hospital of Cracow Poland Walentyna Balwierz
Instytut “Pomnik-Centrum Zdrowia Dziecka” Poland Bożenna Dembowska-Bagińska
Instytut Matki i Dziecka (Mother and Child Institute) Poland Anna Raciborska
Healthcare Provider Member State Contact(s)
Instituto Português de Oncologia do Porto Francisco Gentil, EPE (+ Centro Hospitalar Universitário São João) Ana Maia Ferreira
Instituto Português de Onclogia de Lisboa Francisco Gentil, EPE Portugal Filomena Pereira
Healthcare Provider Member State Contact(s)
National Institute of Children’s Diseases Slovakia Alexandra Kolenova
Healthcare Provider Member State Contact(s)
University Medical Centre Ljubljana Slovenia Janez Jazbek, Marco Kavcic
Healthcare Provider Member State Contact(s)
Hospital Sant Joan de Déu, Barcelona Spain Ofelia Cruz, Guillermo Chantada
Hospital Universitari Vall d´ Hebron Spain Soledad Galego, Jose Sanchez de Toledo
Hospital Universitario y Politécnico La Fe Spain Adela Canete, Antonio Juan Ribelles
Complejo Hospitalario regional Virgen Del Rocio (Sevilla) Spain Moniteau Sophie, Ana Fernandez-Tejeiro Alvarez
Hospital Universitario La Paz Spain Antonio Pérez Martínez
Hospital Universitario Virgen Macarena Spain Ana Fernandez-Teijeiro
Healthcare Provider Member State Contact(s)
Karolinska University Hospital Sweden Cecilia Petersen, Niklas Pal
Skâne University Hospital Sweden Lars Hjorth, Helena Linge
Sahlgrenska University Hospital Sweden Gustaf Österlundh
AFFILIATED PARTNERS
Healthcare Provider Member State Contact(s)
Pediatric Oncohematology Department, University Hospital “Tsaritsa Johanna-ISUL” Bulgaria Boiko Korukov (CEO of the HCP)
Healthcare Provider Member State Contact(s)
Division of Pediatric Hematology and Oncology, Centre of Reference for Pediatric Hematology and Oncology Ministry of Health Republic of Croatia, Department of Pediatrics, University Hospital Center Zagreb, University of Zagreb, School of Medicine Croatia Ante Ćorušić (CEO of the HCP)
Children’s University Hospital Zagreb, Division of Paediatrics Oncology and Haematology Croatia Goran Roić (CEO of the HCP)
Division for Pediatric Haematology and Oncology, University Department of Pediatrics, University Hospital Centre Rijeka, Croatia Croatia Alen Ružić
Healthcare Provider Member State Contact(s)
Pediatric Oncology/Hematology Clinic Archbishop Makarios III Hospital Cyprus Kyriakos Georgiou (CEO of the HCP)
Healthcare Provider Member State Contact(s)
Tallin Children’s Hospital Estonia Katrin Luts (CEO of HCP)
Tartu University Hospital Estonia Priit Eelmäe (CEO of the HCP)
Healthcare Provider Member State Contact(s)
Centre Hospitalier du Luxembourg Luxembourg Romani Nati (CEO of the HCP)
Healthcare Provider Member State Contact(s)
Mater Dei Hospital Malta Ivan Falzon (CEO of the HCP)
Healthcare Provider Member State Contact(s)
Institutul Oncologic “Prof. Dr. Alexandru Trestioreanu” Bucuresti Romania Lidia Anca Kajanto (CEO of the HCP)
Institutul Clinic Fundeni Bucuresti Romania Carmen Orban
PATIENTS AND PARENTS WITHIN THE ERN PAEDCAN: CCI NATIONAL CONTACT POINTS
Healthcare Provider / Organisation Country Website Email
Association “Heart for kids with cancer” (Udruženje “Srce za djecu koja boluju od raka”, Harun Sabic, Lejla Kameric)
Bosnia & Herzegovina www.srcezadjecu.ba l.kameric@ccieurope.eu
Healthcare Provider / Organisation Country Website Email
Association Children with Oncohematologic Diseases (Theodora Armenkova)
Bulgaria www.decaohz.org
armenkova@gmail.com
Healthcare Provider / Organisation Country Website Email
Firefly – Association for helping children and families facing malignant diseases (Krijesnica – Udruga za pomoć djeci i obiteljima suočenim s malignim bolestima, Mihael Severinac) Croatia www.krijesnica.hr
krijesnica@krijesnica.hr
mihael@krijesnica.hr
Healthcare Provider / Organisation Country Website Email
Familier med kræftramte børn (FMKB, Tommy Brøgger) Denmark www.fmkb.dk info@fmkb.dk
Healthcare Provider / Organisation Country Website Email
Estonian Association of Parents of Children with Cancer (Kaili Lellep)
Estonia www.vahilapsed.ee info@vahilapsed.ee
Healthcare Provider / Organisation Country Website Email(s)
SYLVADr Antti Karjalainen (Research)
Finland www.sylva.fi
sylva@sylva.fi
Marika.Aro@sylva.fi
Antti.Karjalainen@sylva.fi
Healthcare Provider / Organisation Country Website Email
UNAPECLE France www.unapecle.net
contact@unapecle.net
Healthcare Provider / Organisation Country Website Email
Monk Andrew’s Charity Foundation (CCI members from 2018, Miledi (Tinatin) Chkhvimiani)
Georgia www.monkandrew.ge
monkandrew.fund@gmail.com
Healthcare Provider / Organisation Member State Website Email
Floga – Parents association of Children with Cancer (Georgia Kokkinou) Greece www.floga.org.gr floga@floga.org.gr
Healthcare Provider / Organisation Country Website Email
Styrktarfélag Krabbameinssjúkra Barna (The Icelandic Childhood Cancer Parent Organization)
Iceland www.skb.is skb@skb.is
Healthcare Provider / Organisation Country Website Email
Childhood Cancer Ireland
Ireland www.childhoodcancer.ie info@childhoodcancer.ie
Healthcare Provider / Organisation Country Website Email
Federazione Italiana associazioni Genitori Oncoematologia(FIAGOP) Angelo Ricci
Italy www.fiagop.it presidente@fiagop.it info@fiagop.it
Healthcare Provider / Organisation Country Website Email
Paguoda Lithuania www.paguoda.org info@paguoda.lt daiva.zaromskiene@gmail.com
Healthcare Provider / Organisation Country Website Email
Fondatioun Kriioncobskrank Kanner (Anne Goeres) Luxembourg www.fondatioun.lu contact@fondatioun.lu
Healthcare Provider / Organisation Country Website Email
FENIX MONTENEGRO’ NGO’ association of parents of children with child’s cancer (Dijana Stojanović) Montenegro www.fenixnvo.me fenix.crnagora@gmail.com
Healthcare Provider / Organisation Country Website(s) Email
Vereniging Kinderkanker Nederland, VOKK Netherlands www.kinderkankernederland.nl www.koesterkind.nl (palliative) info@vokk.nl
Healthcare Provider / Organisation Country Website Email
Barnekreftforeningen (The Norwegian Childhood Cancer Organization) Norway www.barnekreftforeningen.no sekretariatet@barnekreftforeningen.no ;
Healthcare Provider / Organisation Country Website(s) Email
ISKIERKA Foundation (Magda Stajno) Poland www.fundacjaiskierka.pl m.stajno@fundacjaiskierka.pl
Healthcare Provider / Organisation Country Website Email
Acreditar – Association of Parents and Friends of Children with Cancer (Tiago Pinta da Costa) Portugal www.acreditar.org.pt
acreditar@acreditar.pt
Healthcare Provider / Organisation Country Website Email
Daruieste Aripi Association (Give Wings Association, Alina Pătrăhău) Romania https://www.daruiestearipi.ro/en/
alina@daruiestearipi.ro
Healthcare Provider / Organisation Country Website Email
“ZVONČICA” Childhood Cancer Parent Organization Serbia www.zvoncica.org.rs udruzenjezvoncica@gmail.com
Healthcare Provider / Organisation Country Website Email
SMILE, n.o., POMÁHAME S ÚSMEVOM (Ludmila Hurajova) Slovakia www.lifesupport.sk
info@lifesupport.sk
Healthcare Provider / Organisation Country Website Email
JONATAN PRIJATELJ, Društvo staršev otrok z rakom Slovenia N/A
tatjana.kruder@siol.net
Healthcare Provider / Organisation Country Website Email
Federación Española de Familias de Cáncer Infantil (Luisa Basset)
Spain www.cancerinfantil.org
LBASSET@mes.upv.es
Healthcare Provider / Organisation Country Website Email(s)
Childhood Cancer Parents Alliance (CCPA)
UK
www.ccpa.org.uk
R.Olley@ccpa.org.uk
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