FULL MEMBERS

Healthcare Provider  Member State   
St. Anna Children´s Hospital & Children´s Cancer Research Institute  Austria (ERN-Coordinator)   
Healthcare Provider  Member State  Contact(s) 
Ghent University Hospital (Pediatric Hematology-Oncology & Stem Cell Transplantation, Universitair Ziekenhuis)  Belgium  Genevieve Laureay, Melissa Bol 
Hôpital Universiataire des Enfants Reine Fabiola  Belgium  Christine Devalck, Sarah Wambacq 
UZ Leuven  Belgium  Anne Uyttebroeck 
Cliniques universitaires Saint-Luc  Belgium  Bénédicte Brichard 
Healthcare Provider  Member State  Contact(s) 
University Hospital Brno  Czech Republic  Jaroslav Sterba 
University Hospital Motol, Prague  Czech Republic  Karel Svojgr
Healthcare Provider  Member State  Contact(s) 
Copenhagen University Hospital, Rigshospitalet  Denmark  Karsten Nysom, Schmiegelow 
Aarhus Universitets Hospital  Denmark  Henrik Hasle 
Healthcare Provider  Member State  Contact(s) 
Kuopio University Hospital  Finland  Kaisa Vepsalainen, Pekka Riikonen 
Tampere University Hospital  Finland  Olli Lohi, Mikko Arola 
Turku University Hospital, The Hospital District of Southwest Finland  Finland  Päivi Maria Lätheenmaki 
ERN PaedCanHUSOY (HUS Helsinki University Hospital + Oulu University Hospital (OYS))  Finland  Jukka Kanerva 
Healthcare Provider  Member State  Contact(s) 
Hôpital Bicetre  France  Branchereau Sophie, Isabelle Fernandez 
Hôpital Trousseau  France  Guy Leverger, Sabine Irtan, 
Hôpital Universitaire Necker- Enfants malades  France  Christophe Chardot, Sabine Sarnacki 
Institut Curie  France  Francois Doz 
Institut d´hematologie et d´oncologie pédiatrique (IHOPE)  France  Christoph Bergeron, Jean Yves Blay 
Institut Gustave Roussy  France  Dominique Valteau-Couanet, Gilles Vassal, Valerie Marechal 
Fondation Ophtalmologique Adolphe de Rothschild  France  Gillaume le Henanff, Julien Gottsmann 
Healthcare Provider  Member State  Contact(s) 
Hannover Medical School  Germany  Brigitte Schlegelberger 
Charité Universitätsmedizin Berlin  Germany  Angelika Eggert 
Christian-Albrechts-Universität zu Kiel (CAU)  Germany  Martin Schrappe 
Klinikum Dortmund GmbH  Germany  Schneider Dominik 
Klinikum Stuttgart-Olgahospital  Germany  Stefan Bielack
University Children´s Hospital Tübingen  Germany  Ines Brecht 
University Medical Center Freiburg  Germany  Brigitte Strahm
University Hospital Gießen- Marburg  Germany  Dieter Körholz 
University Hospital Bonn  Germany  Gabriele Calaminus 
Universitätsklinikum Erlangen  Germany  Axel Karow 
Universitätsklinikum Essen  Germany  Uta Dirksen 
Universitätsklinikum Augsburg  Germany  Michael Frühwald 
Universitätsklinikum Frankfurt  Germany  Thomas Lehrnbecher 
Klinkum rechts der Isar der Technischen Universität München und München Klinik Schwabing  Germany  Stefan Burdach 
European Medical School Oldenburg – Groningen  Germany  Hermann L. Müller 
Universitätsklinikum Hamburg-Eppendorf  Germany  Stefan Rutkowski 
Universitätsklinikum Schleswig-Holstein  Germany  Thorsten Langer 
Universitätsklinikum Aachen  Germany  Udo Kontny 
Universitätsklinikum Düsseldorf  Germany  Arndt Brokhardt

 

Healthcare Provider  Member State  Contact(s) 
“Aghia Sophia” Children’s Hospital  Greece  Antonis Kattamis
Healthcare Provider  Member State  Contact(s) 
Semmelweis University  Hungary  Miklos Garami 
Cental Hospital of Southern Pest National Institute of Hematology and Infectious Diseases  Hungary  Gergely Kriván 
Healthcare Provider  Member State  Contact(s) 
Children’s Health Ireland  Ireland  Cormac Owens 
Healthcare Provider  Member State  Contact(s) 
Department of Pediatrics-University of Milano-Bicocca/Fundation MBBM, at San Gerardo Hospital, Monza  Italy  Andrea Biondi 
IRCCS Istituto Giannina Gaslini  Italy  Riccardo Haupt 
Meyer Children´s Hospital Florence  Italy  Daniela Cuzzubbo, Camilla Rosa 
Ospedale Pediatrico Bambino Gesú  Italy  Franco Locatelli, Angela Mastronuzzi 
Policlinico San Matteo, Fondazione IRCCS Pavia  Italy  Marco Zecca 
Azienda Ospedialiera di Padova (AOP)  Italy  Gianni Bisogno 
AziendaOspedaliera Universitaria Senese  Italy  Alessandra Renieri 
Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino- S.C. Oncoematologia Pediatrica e Centro Trapianti, Presidio Ospedale Infantile regina Margherita  Italy  Franca Fagioli 
Azienda Ospedaliera S. Maria della Misericordia di Perugia  Italy  Christina Mecucci 
Fondazione IRCCS Istituto Neurologico Carlo Besta di Milano  Italy  Francesco DiMeco 
Fondazione Policlinico Universitario A. Gemelli IRCCS – Roma  Italy  Antonio Ruggiero 
Fondazione IRCCS Istituto Nazionale dei Tumori  Italy  Maura Massimino 
Healthcare Provider  Member State  Contact(s) 
Children´s Clinical University Hospital, Riga  Latvia  Zanna Kovalova 
Healthcare Provider  Member State  Contact(s) 
Vilnius University Hospital Santariskiu Klinikos  Lithuania  Jelena Rascon 
Healthcare Provider  Member State  Contact(s) 
Stichting VU-VUmc  Netherlands  Anne Moll 
EMC (All functions have been taken over by Princess Máxima Centre)  Netherlands  Michel Zwaan 
Princess Maxima Center  Netherlands  Peter Hoogerbrugge 
Healthcare Provider  Member State  Contact(s) 
Oslo University Hospital  Norway  Bernward Zeller 
Healthcare Provider  Member State  Contact(s) 
T. Marciniak Lower Silesian Specialist Hospital- Emergency Hospital (Wroclaw)  Poland  Jan Godzinski 
University Children Hospital in Lublin (UCHL)  Poland  Jerzy Kowalzcyk 
University Clinical Center Gdansk  Poland  Ewa Bien 
University Children’s Hospital of Cracow  Poland  Walentyna Balwierz 
Instytut “Pomnik-Centrum Zdrowia Dziecka”  Poland  Bożenna Dembowska-Bagińska 
Instytut Matki i Dziecka (Mother and Child Institute)  Poland  Anna Raciborska 
Healthcare Provider  Member State  Contact(s) 
Instituto Português de Oncologia do Porto Francisco Gentil, EPE (+ Centro Hospitalar Universitário São João)  Ana Maia Ferreira
Instituto Português de Onclogia de Lisboa Francisco Gentil, EPE  Portugal  Filomena Pereira 
Healthcare Provider  Member State  Contact(s) 
National Institute of Children’s Diseases  Slovakia  Alexandra Kolenova 
Healthcare Provider  Member State  Contact(s) 
University Medical Centre Ljubljana  Slovenia  Janez Jazbek, Marco Kavcic 
Healthcare Provider  Member State  Contact(s) 
Hospital Sant Joan de Déu, Barcelona  Spain  Ofelia Cruz,  Guillermo Chantada 
Hospital Universitari Vall d´ Hebron  Spain  Soledad Galego, Jose Sanchez de Toledo 
Hospital Universitario y Politécnico La Fe  Spain  Adela Canete, Antonio Juan Ribelles 
Complejo Hospitalario regional Virgen Del Rocio (Sevilla)  Spain  Moniteau Sophie, Ana Fernandez-Tejeiro Alvarez 
Hospital Universitario La Paz  Spain  Antonio Pérez Martínez 
Hospital Universitario Virgen Macarena  Spain  Ana Fernandez-Teijeiro 
Healthcare Provider  Member State  Contact(s) 
Karolinska University Hospital  Sweden  Cecilia Petersen, Niklas Pal 
Skâne University Hospital  Sweden  Lars Hjorth, Helena Linge 
Sahlgrenska University Hospital  Sweden  Gustaf Österlundh 

AFFILIATED PARTNERS

Healthcare Provider  Member State  Contact(s) 
Pediatric Oncohematology Department, University Hospital “Tsaritsa Johanna-ISUL”  Bulgaria  Boiko Korukov (CEO of the HCP) 
Healthcare Provider  Member State  Contact(s) 
Division of Pediatric Hematology and Oncology,  Centre of Reference for Pediatric Hematology and Oncology Ministry of Health Republic of Croatia, Department of Pediatrics, University Hospital Center Zagreb, University of Zagreb, School of Medicine  Croatia  Ante Ćorušić (CEO of the HCP) 
Children’s University Hospital Zagreb, Division of Paediatrics Oncology and Haematology  Croatia  Goran Roić (CEO of the HCP) 
Division for Pediatric Haematology and Oncology, University Department of Pediatrics, University Hospital Centre Rijeka, Croatia  Croatia  Alen Ružić
Healthcare Provider  Member State  Contact(s) 
Pediatric Oncology/Hematology Clinic Archbishop Makarios III Hospital  Cyprus  Kyriakos Georgiou (CEO of the HCP) 
Healthcare Provider  Member State  Contact(s) 
Tallin Children’s Hospital  Estonia  Katrin Luts (CEO of HCP) 
Tartu University Hospital  Estonia  Priit Eelmäe (CEO of the HCP) 
Healthcare Provider  Member State  Contact(s) 
Centre Hospitalier du Luxembourg  Luxembourg  Romani Nati (CEO of the HCP) 
Healthcare Provider  Member State  Contact(s) 
Mater Dei Hospital  Malta  Ivan Falzon (CEO of the HCP) 
Healthcare Provider  Member State  Contact(s) 
Institutul Oncologic “Prof. Dr. Alexandru Trestioreanu” Bucuresti  Romania  Lidia Anca Kajanto (CEO of the HCP) 
Institutul Clinic Fundeni Bucuresti  Romania  Carmen Orban 

PATIENTS AND PARENTS WITHIN THE ERN PAEDCAN: CCI NATIONAL CONTACT POINTS

Healthcare Provider / Organisation  Country  Website Email 
You are a sunflower Albania www.youareasunflower.org official@youareasunflower.org  
Healthcare Provider / Organisation  Member State  Website  Email 
Österreichische Kinder-Krebs-Hilfe
& Survivors Austria (Hannah Gsell)
Austria  www.kinderkrebshilfe.at www.survivors.at  oesterreichische@kinderkrebshilfe.at
office@survivors-austria.at
Healthcare Provider / Organisation  Country Website  Email 
KickCancer (Delphine Heenen) Belgium  www.kickcancer.org info@kickcancer.org

delphine@kickcancer.org

Healthcare Provider / Organisation  Country Website Email 
Association “Heart for kids with cancer” (Udruženje “Srce za djecu koja boluju od raka”, Harun Sabic, Lejla Kameric) Bosnia & Herzegovina  www.srcezadjecu.ba l.kameric@ccieurope.eu
harun.sabic@srcezadjecu.ba 
Healthcare Provider / Organisation  Country Website  Email 
Association Children with Oncohematologic Diseases (Theodora Armenkova) Bulgaria  www.decaohz.org armenkova@gmail.com
ohz_deca@abv.bg
 
Healthcare Provider / Organisation  Country Website  Email 
Firefly – Association for helping children and families facing malignant diseases (Krijesnica – Udruga za pomoć djeci i obiteljima suočenim s malignim bolestima, Mihael Severinac) Croatia  www.krijesnica.hr krijesnica@krijesnica.hr

mihael@krijesnica.hr

Healthcare Provider / Organisation  Country  Website Email 
Familier med kræftramte børn
(FMKB, Tommy Brøgger)
Denmark  www.fmkb.dk  info@fmkb.dk 
Healthcare Provider / Organisation  Country  Website  Email 
Estonian Association of Parents of Children with Cancer (Kaili Lellep) Estonia  www.vahilapsed.ee info@vahilapsed.ee 
Healthcare Provider / Organisation  Country Website Email(s)
SYLVA
Ms Marika Aro (CEO)
Dr Antti Karjalainen (Research)
Finland  www.sylva.fi sylva@sylva.fi

Marika.Aro@sylva.fi

Antti.Karjalainen@sylva.fi 

Healthcare Provider / Organisation  Country Website  Email 
UNAPECLE  France  www.unapecle.net contact@unapecle.net 
Healthcare Provider / Organisation  Country Website  Email 
Monk Andrew’s Charity Foundation (CCI members from 2018, Miledi (Tinatin) Chkhvimiani) Georgia  www.monkandrew.ge monkandrew.fund@gmail.com 
Healthcare Provider / Organisation  Member State  Website Email 
Deutsche Kinderkrebsstiftung  Germany  www.kinderkrebsstiftung.de hannowsky@kinderkrebsstiftung.de info@kinderkrebsstiftung.de 
Healthcare Provider / Organisation  Member State  Website Email 
Floga – Parents association of Children with Cancer (Georgia Kokkinou) Greece  www.floga.org.gr floga@floga.org.gr 
Healthcare Provider / Organisation  Country Website  Email 
Styrktarfélag Krabbameinssjúkra Barna (The Icelandic Childhood Cancer Parent Organization) Iceland  www.skb.is skb@skb.is 
Healthcare Provider / Organisation  Country  Website Email 
Childhood Cancer Ireland Ireland  www.childhoodcancer.ie  info@childhoodcancer.ie
Healthcare Provider / Organisation  Country  Website Email 
Federazione Italiana associazioni Genitori Oncoematologia
Pediatrica (FIAGOP)  Angelo Ricci
Italy  www.fiagop.it presidente@fiagop.it
info@fiagop.it 
 
 
Healthcare Provider / Organisation  Country Website  Email 
Paguoda Lithuania www.paguoda.org info@paguoda.lt daiva.zaromskiene@gmail.com 
Healthcare Provider / Organisation  Country  Website  Email 
Fondatioun Kriioncobskrank Kanner (Anne Goeres) Luxembourg  www.fondatioun.lu contact@fondatioun.lu 
Healthcare Provider / Organisation  Country Website Email 
SANO Macedonia www.sano.org.mk marijatasev02@gmail.com

infosano@yahoo.com

Healthcare Provider / Organisation  Country Website  Email 
FENIX MONTENEGRO’ NGO’ association of parents of children with child’s cancer (Dijana Stojanović) Montenegro  www.fenixnvo.me  fenix.crnagora@gmail.com  
Healthcare Provider / Organisation  Country Website(s) Email 
Vereniging Kinderkanker Nederland, VOKK
(Jaap den Hartogh)
Netherlands  www.kinderkankernederland.nl
www.koesterkind.nl (palliative)
www.kanjerketting.nl
www.vox.nl (survivors)
info@vokk.nl
Healthcare Provider / Organisation  Country  Website Email 
Barnekreftforeningen
(The Norwegian Childhood Cancer Organization)
Norway  www.barnekreftforeningen.no  sekretariatet@barnekreftforeningen.no; 
Healthcare Provider / Organisation  Country  Website(s) Email 
ISKIERKA Foundation (Magda Stajno)  Poland  www.fundacjaiskierka.pl
m.stajno@fundacjaiskierka.pl  
Healthcare Provider / Organisation  Country  Website  Email 
Acreditar – Association of Parents and Friends of Children with Cancer (Tiago Pinta da Costa) Portugal  www.acreditar.org.pt acreditar@acreditar.pt 
Healthcare Provider / Organisation  Country Website Email 
Daruieste Aripi Association (Give Wings Association, Alina Pătrăhău) Romania  https://www.daruiestearipi.ro/en/ alina@daruiestearipi.ro 
Healthcare Provider / Organisation  Country  Website Email(s)
Children and parents against cancer (CAPAC, Ekaterina Kiseleva))  Russia  www.capac.ru childrencancer@mail.ru childrencancer@capac.ru
info@capac.ru
Healthcare Provider / Organisation  Country  Website  Email 
“ZVONČICA” Childhood Cancer Parent Organization  Serbia  www.zvoncica.org.rs 
udruzenjezvoncica@gmail.com  
Healthcare Provider / Organisation  Country Website Email 
SMILE, n.o., POMÁHAME S ÚSMEVOM
(Ludmila Hurajova) 
Slovakia  www.lifesupport.sk info@lifesupport.sk 
Healthcare Provider / Organisation  Country Website Email 
JONATAN PRIJATELJ, Društvo staršev otrok z rakom
(Tatjana Kruder)
 
Slovenia  N/A tatjana.kruder@siol.net
Healthcare Provider / Organisation  Country  Website Email 
Federación Española de Padres del Niños con Cáncer (Luisa Basset) Spain  www.cancerinfantil.org LBASSET@mes.upv.es
Healthcare Provider / Organisation  Country  Website  Email(s) 
Barncancerfonden  Sweden  www.barncancerfonden.se info@barncancerfonden.se
forskning@barncancerfonden.se
Healthcare Provider / Organisation  Country Website(s)               Email 
  • Zoé4life (Nicole Scobie)
  • Kinderkrebs Schweiz = Cancer de l’Enfant en Suisse = Cancro infantile in Svizzera = Childhood Cancer Switzerland (Zuzana Tomasikova)
Switzerland  www.zoe4life.org www.kinderkrebs-schweiz.ch nicole@zoe4life.org
info@kinderkrebs-schweiz.ch
Healthcare Provider / Organisation  Country  Contact(s)  Email(s)
Tabletochki Charity Foundation
(Yuliya Nogovitsyna)
Ukraine www.tabletochki.org/en y.gerbut@tabletochki.org 
info@tabletochki.org
y.nogovitsyna@tabletochki.org
Healthcare Provider / Organisation  Country Website Email(s)
Childhood Cancer Parents Alliance (CCPA) UK www.ccpa.org.uk R.Olley@ccpa.org.uk

 

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