Coordinator:
ERN PaedCan Project Management Team
Project Coordinator Professor Ruth Ladenstein
Children’s Cancer Research Institute – St. Anna Kinderkrebsforschung
Vienna, Austria
Full Members:
List of healthcare providers that acquired membership of the ERN-PAEDCAN
| No | Healthcare Provider Name | Member State | Contact Point |
| 1 | St. Anna Children´s Hospital & Children´s Cancer Research Institute | Austria (ERN-Coordinator) | |
| 2 | Ghent University Hospital (Pediatric Hematology-Oncology & Stem Cell Transplantation, Universitair Ziekenhuis) | Belgium | Genevieve Laureay, Melissa Bol |
| 3 | Hôpital Universiataire des Enfants Reine Fabiola | Belgium | Alina Ferster (Alice), |
| 4 | UZ Leuven | Belgium | Anne Uyttebroeck |
| 5 | University Hospital Brno | Czech Republic | Jaroslav Sterba; |
| 6 | University Hospital Motol, Prague | Czech Republic | Jan Stary |
| 7 | Copenhagen University Hospital, Rigshospitalet | Denmark | Karsten Nysom, Schmiegelow |
| 8 | Kuopio University Hospital | Finland | Kaisa Vepsalainen, Pekka Riikonen |
| 9 | Tampere University Hospital | Finland | Olli Lohi, Mikko Arola |
| 10 | Turku University Hospital, The Hospital District of Southwest Finland | Finland | Päivi Maria Lätheenmaki |
| 11 | Hôpital Bicetre | France | Branchereau Sophie, Isabelle Fernandez |
| 12 | Hôpital Trousseau | France | Guy Leverger, Sabine Irtan, |
| 13 | Hôpital Universitaire Necker- Enfants malades | France | Christophe Chardot, Sabine Sarnacki |
| 14 | Institut Curie | France | Francois Doz |
| 15 | Institut d´hematologie et d´oncologie pédiatrique (IHOPE) | France | Christoph Bergeron, Jean Yves Blay |
| 16 | Institut Gustave Roussy | France | Dominique Valteau-Couanet, Gilles Vassal, Valerie Marechal |
| 17 | Fondation Ophtalmologique Adolphe de Rothschild | France | Gillaume le Henanff, Julien Gottsmann |
| 18 | Hannover Medical School | Germany | Brigitte Schlegelberger |
| 19 | Dr von Hauner Children´s Hospital, University Hospital Munich | Germany | Jochen Hubertus |
| 20 | Charité Universitätsmedizin Berlin | Germany | Angelika Eggert |
| 21 | Christian-Albrechts-Universität zu Kiel (CAU) | Germany | Martin Schrappe |
| 22 | Klinikum Dortmund GmbH | Germany | Schneider Dominik |
| 23 | Klinikum Stuttgart-Olgahospital | Germany | Stefan Bielack |
| 24 | University Children´s Hospital Tübingen | Germany | Ines Brecht |
| 25 | University Medical Center Freiburg | Germany | Silvia Rathmann |
| 26 | University Hospital Gießen- Marburg | Germany | Dieter Körholz |
| 27 | University Hospital Bonn | Germany | Gabriele Calaminus |
| 28 | Semmelweis University | Hungary | Miklos Garami |
| 29 | Department of Pediatrics-University of Milano-Bicocca/Fundation MBBM, at San Gerardo Hospital, Monza | Italy | Andrea Biondi, |
| 30 | IRCCS Istituto Giannina Gaslini | Italy | Riccardo Haupt |
| 31 | Meyer Children´s Hospital Florence | Italy | Claudio Favre, Camilla Rosa |
| 32 | Ospedale Pediatrico Bambino Gesú | Italy | Franco Locatelli, Angela Mastronuzzi |
| 33 | Policlinico San Matteo, Fondazione IRCCS Pavia | Italy | Marco Zecca |
| 34 | Azienda Ospedialiera di Padova (AOP) | Italy | Gianni Bisogno |
| 35 | AziendaOspedaliera Universitaria Senese | Italy | Alessandra Renieri |
| 36 | Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino- S.C. Oncoematologia Pediatrica e Centro Trapianti, Presidio Ospedale Infantile regina Margherita | Italy | Franca Fagioli |
| 37 | Azienda Ospedaliera S. Maria della Misericordia di Perugia | Italy | Christina Mecucci |
| 38 | Children´s Clinical University Hospital, Riga | Latvia | Zanna Kovalova, |
| 39 | Vilnius University Hospital Santariskiu Klinikos | Lithuania | Jelena Rascon |
| 40 | Stichting VU-VUmc | Netherlands | Anne Moll |
| 41 | Erasmus MC: Sophia Children´s Hospital | Netherlands | Zwaan |
| 42 | Copernicus Medical Company LTD | Poland | Piotr Czauderna, |
| 43 | T. Maciniak Lower Silesian Specialist Hospital-Emergency Hospital | Poland | Jan Godzinski |
| 44 | University Children Hospital in Lublin (UCHL) | Poland | Jerzy Kowalzcyk |
| 45 | University Clinical Center Gdansk | Poland | Stachowics-Stencel, Ewa Bien |
| 46 | Centro Hospitalar e Universitario de Coimbra | Portugal | Alice Carvalho |
| 47 | Instituto Português de Onclogia de Lisboa Francisco Gentil, EPE | Portugal | Filomena Pereira |
| 48 | University Medical Centre Ljubljana | Slovenia | Janez Jazbek, Marco Kavcic |
| 49 | Hospital de Sant Joan de Dèu | Spain | Ofelia Cruz, Guillermo Chantada |
| 50 | Hospital Universitari Vall d´ Hebron | Spain | Soledad Galego, Jose Sanchez de Toledo |
| 51 | Hospital Universitario y Politécnico La Fe | Spain | Adela Canete, Antonio Juan Ribelles |
| 52 | Complejo Hospitalario Regional Virgen del Rocío | Spain | Moniteau Sophie, Ana Fernandez-Tejeiro Alvarez, |
| 53 | Karolinska University Hospital | Sweden | Cecilia Petersen, Niklas Pal, |
| 54 | Skâne University Hospital | Sweden | Lars Hjorth, Helena Linge |
| 55 | Birmingham Children´s Hospital- NHS Foundation Trust | United Kingdom | Helen Jenkinson, Bruce Morland, |
| 56 | Great Ormond Street Hospital- NHS Foundation Trust | United Kingdom | Jesper Brock, Kathy Pritchard Jones |
| 57 | Royal Manchester Children´s Hospital | United Kingdom | Bernadette Brennan |
Affiliated Partners
| Nr. | Centre | Country | Contact Person(s) |
| 58 | Pediatric Oncohematology Department, University Hospital “Tsaritsa Johanna-ISUL” | Bulgaria | Prof. Boiko Korukov (CEO of the HCP) Prof. Dobrin Konstantinov (ERN rep., Head of the Ped.Oncohem.Dept.) |
| 59 | Division of Pediatric Hematology and Oncology, Centre of Reference for Pediatric Hematology and Oncology Ministry of Health Republic of Croatia, Department of Pediatrics, University Hospital Center Zagreb, University of Zagreb, School of Medicine | Croatia | Prof. Ante Ćorušić, MD , PhD (CEO of the HCP) Prof. Ernest Bilić (ERN rep.) |
| 60 | Children’s University Hospital Zagreb, Division of Paediatrics Oncology and Haematology | Croatia | Prof. Goran Roić, MD PhD (CEO of the HCP) Ass.Prof. Jasminka Stepan Giljević (ERN rep.) |
| 61 | DIVISION FOR PEDIATRIC HAEMATOLOGY AND ONCOLOGY, UNIVERSITY DEPARTMENT OF PEDIATRICS, UNIVERSITY HOSPITAL CENTRE RIJEKA, CROATIA | Croatia | Prof. Davor Štimac, MD, PhD Prof. Jelena Roganović, MD, PhD |
| 62 | Pediatric Oncology/Hematology Clinic Archbishop Makarios III Hospital | Cyprus | Mr. Kyriakos Georgiou (CEO of the HCP) Dr. Loizos Loizou (ERN rep.) |
| 63 | Tallin Children’s Hospital | Estonia | Dr. Katrin Luts (CEO of HCP); Dr. Kadri Saks (ERN repr.) |
| 64 | Tartu University Hospital | Estonia | Dr. Priit Eelmäe (CEO of the HCP) Dr. Lenne-Triin Kõrgvee (ERN rep.) |
| 65 | Centre Hospitalier du Luxembourg | Luxembourg | Dr. Romani Nati (CEO of the HCP) Dr. Martine Goergen (ERN rep.) |
| 66 | Mater Dei Hospital | Malta | Mr. Ivan Falzon (CEO of the HCP) Dr. James Clark (ERN rep.) |
| 67 | Institutul Oncologic “Prof. Dr. Alexandru Trestioreanu” Bucuresti | Romania | Dr. Lidia Anca Kajanto (CEO of the HCP) Assoc.Prof. Monica Desiree Dragomir (ERN rep.) |
| 68 | Institutul Clinic Fundeni Bucuresti | Romania | Assoc.Prof. Dr. Carmen Orban Assoc.Prof. Dr. Anca Colita |
| 69 | National Institute of Children’s Diseases, Comenius University in Bratislava, Faculty of Medicine, Department of Paediatric Haematology and Oncology | Slovakia | Assoc. Prof MUDr. Ladislav Kužela, CSs, MPH Assoc. Prof. MUDr. Alexandra Kolenová, PhD |
Patients and Parents within the ERN PaedCan: CCI National contact points
| Organization | Country | Name | |
| Österreichische Kinder-Krebs-Hilfe | AUSTRIA | Anita Kienesberger | a.kienesberger@kinderkrebshilfe.at |
| KickCancer | BELGIUM | Delphine Heenen | info@kickcancer.org |
| Association “Heart for kids with cancer” (Udruženje “Srce za djecu koja boluju od raka”) | BOSNIA & HERZEGOVINA | Lejla Kamerić Harun Šabić |
lejla.kameric@gmail.com harun.sabic@srcezadjecu.ba |
| Association Children with Oncohematologic Diseases | BULGARIA | Theodora Armenkova | armenkova@gmail.com ohz_deca@abv.bg |
| Firefly – Association for helping children and families facing malignant diseases (Krijesnica – Udruga za pomoć djeci i obiteljima suočenim s malignim bolestima) | CROATIA | Mihael Severinac | mihael@krijesnica.hr
|
| Familier med kræftramte børn (FMKB) | DENMARK | Tommy Brøgger | info@fmkb.dk |
| Estonian Association of Parents of Children with Cancer
|
ESTONIA | Kaili Lellep | info@vahilapsed.ee |
| SYLVA | FINLAND | Ms Marika Aro (CEO)
Dr Antti Karjalainen (Research) |
sylva@sylva.fi Marika.Aro@sylva.fi Antti.Karjalainen@sylva.fi |
| UNAPECLE | FRANCE | Frédéric Arnold | contact@unapecle.net |
| Monk Andrew’s Charity Foundation (CCI members from 2018) | GEORGIA | Miledi (Tinatin) Chkhvimiani | monkandrew.fund@gmail.com |
| Deutsche Kinderkrebsstiftung | GERMANY | Ria Kortum | r.kortum@kinderkrebsstiftung.de |
| Floga – Parents association of Children with Cancer | GREECE | Georgia Kokkinou | floga@floga.org.gr |
| Childhood Cancer Foundation (CCF (Light it up Gold)) | IRELAND | Mary Claire Rennick | info@childhoodcancer.ie Maryclaire.rennick@childhoodcancer.ie |
| Federazione Italiana associazioni Genitori Oncoematologia Pediatrica (FIAGOP) |
ITALY | Angelo Ricci | presidente@fiagop.it info@fiagop.it |
| Fondatioun Kriioncobskrank Kanner | LUXEMBOURG | Anne Goeres | contact@fondatioun.lu |
| FENIX MONTENEGRO’ NGO’ association of parents of children with child’s cancer | MONTENEGRO | Dijana Stojanović | fenix.crnagora@gmail.com |
| VOKK | NETHERLANDS | Jaap den Hartogh | bureau@vokk.nl |
| ISKIERKA Foundation | POLAND | Magda Stajno | m.stajno@fundacjaiskierka.pl |
| Acreditar – Association of Parents and Friends of Children with Cancer | PORTUGAL | Telma Sousa | ts@acreditar.pt |
| Daruieste Aripi Association (Give Wings Association) | ROMANIA | Alina Pătrăhău | alina@daruiestearipi.ro |
| Children and parents against cancer (CAPAC) | RUSSIA | Ekaterina Kiseleva | katerinakiss@mail.ru |
| “ZVONČICA” Childhood Cancer Parent Organization | SERBIA | Irina Ban | udruzenjezvoncica@gmail.com |
| SMILE, n.o., POMÁHAME S ÚSMEVOM | SLOVAKIA | Ludmila Hurajova | hurajova@lifesupport.sk |
| JONATAN PRIJATELJ, Društvo staršev otrok z rakom | SLOVENIA | Tatjana Kruder | tatjana.kruder@siol.net |
| Federación Española de Padres del Niños con Cáncer | SPAIN | Luisa Basset | LBASSET@mes.upv.es |
| Barncancerfonden | SWEDEN | Holly Wattwil | holly.wattwil@gmail.com |
| Zoé4life | SWITZERLAND | Nicole Scobie | nicole@zoe4life.org |
| Tabletochki Charity Foundation | UKRAINE | Yuliya Nogovitsyna | info@tabletochki.org |
| Childhood Cancer Parents Alliance (CCPA) | UK | Sam Schoolar | ro@ccpa.org.uk sam@shinealightss.org.uk |
