FULL MEMBERS
| Healthcare Provider | Member State | |
| St. Anna Children´s Hospital & Children´s Cancer Research Institute | Austria (ERN-Coordinator) |
| Healthcare Provider | Member State | Contact(s) |
| Ghent University Hospital (Pediatric Hematology-Oncology & Stem Cell Transplantation, Universitair Ziekenhuis) | Belgium | Genevieve Laureay, Melissa Bol |
| Hôpital Universiataire des Enfants Reine Fabiola | Belgium | Alina Ferster (Alice) |
| UZ Leuven | Belgium | Anne Uyttebroeck |
| Cliniques universitaires Saint-Luc | Belgium | Bénédicte Brichard |
| Healthcare Provider | Member State | Contact(s) |
| University Hospital Brno | Czech Republic | Jaroslav Sterba |
| University Hospital Motol, Prague | Czech Republic | Karel Svojgr |
| Healthcare Provider | Member State | Contact(s) |
| Copenhagen University Hospital, Rigshospitalet | Denmark | Karsten Nysom, Schmiegelow |
| Aarhus Universitets Hospital | Denmark | Henrik Hasle |
| Healthcare Provider | Member State | Contact(s) |
| Kuopio University Hospital | Finland | Kaisa Vepsalainen, Pekka Riikonen |
| Tampere University Hospital | Finland | Olli Lohi, Mikko Arola |
| Turku University Hospital, The Hospital District of Southwest Finland | Finland | Päivi Maria Lätheenmaki |
| ERN PaedCanHUSOY (HUS Helsinki University Hospital + Oulu University Hospital (OYS)) | Finland | Jukka Kanerva |
| Healthcare Provider | Member State | Contact(s) |
| Hôpital Bicetre | France | Branchereau Sophie, Isabelle Fernandez |
| Hôpital Trousseau | France | Guy Leverger, Sabine Irtan, |
| Hôpital Universitaire Necker- Enfants malades | France | Christophe Chardot, Sabine Sarnacki |
| Institut Curie | France | Francois Doz |
| Institut d´hematologie et d´oncologie pédiatrique (IHOPE) | France | Christoph Bergeron, Jean Yves Blay |
| Institut Gustave Roussy | France | Dominique Valteau-Couanet, Gilles Vassal, Valerie Marechal |
| Fondation Ophtalmologique Adolphe de Rothschild | France | Gillaume le Henanff, Julien Gottsmann |
| Healthcare Provider | Member State | Contact(s) |
| Hannover Medical School | Germany | Brigitte Schlegelberger |
| Dr von Hauner Children´s Hospital, University Hospital Munich | Germany | Jochen Hubertus |
| Charité Universitätsmedizin Berlin | Germany | Angelika Eggert |
| Christian-Albrechts-Universität zu Kiel (CAU) | Germany | Martin Schrappe |
| Klinikum Dortmund GmbH | Germany | Schneider Dominik |
| Klinikum Stuttgart-Olgahospital | Germany | Stefan Bielack |
| University Children´s Hospital Tübingen | Germany | Ines Brecht |
| University Medical Center Freiburg | Germany | Silvia Rathmann |
| University Hospital Gießen- Marburg | Germany | Dieter Körholz |
| University Hospital Bonn | Germany | Gabriele Calaminus |
| Universitätsklinikum Erlangen | Germany | Axel Karow |
| Universitätsklinikum Essen | Germany | Uta Dirksen |
| Universitätsklinikum Augsburg | Germany | Michael Frühwald |
| Universitätsklinikum Frankfurt | Germany | Thomas Lehrnbecher |
| Klinkum rechts der Isar der Technischen Universität München und München Klinik Schwabing | Germany | Stefan Burdach |
| European Medical School Oldenburg – Groningen | Germany | Hermann L. Müller |
| Universitätsklinikum Hamburg-Eppendorf | Germany | Stefan Rutkowski |
| Universitätsklinikum Schleswig-Holstein | Germany | Thorsten Langer |
| Universitätsklinikum Aachen | Germany | Udo Kontny |
| Universitätsklinikum Düsseldorf | Germany | Arndt Borkhardt |
| Healthcare Provider | Member State | Contact(s) |
| “Aghia Sophia” Children’s Hospital | Greece | Sophia Polychronopoulou |
| Healthcare Provider | Member State | Contact(s) |
| Semmelweis University | Hungary | Miklos Garami |
| Cental Hospital of Southern Pest National Institute of Hematology and Infectious Diseases | Hungary | Gergely Kriván |
| Healthcare Provider | Member State | Contact(s) |
| Children’s Health Ireland | Ireland | Cormac Owens |
| Healthcare Provider | Member State | Contact(s) |
| Department of Pediatrics-University of Milano-Bicocca/Fundation MBBM, at San Gerardo Hospital, Monza | Italy | Andrea Biondi |
| IRCCS Istituto Giannina Gaslini | Italy | Riccardo Haupt |
| Meyer Children´s Hospital Florence | Italy | Daniela Cuzzubbo, Camilla Rosa |
| Ospedale Pediatrico Bambino Gesú | Italy | Franco Locatelli, Angela Mastronuzzi |
| Policlinico San Matteo, Fondazione IRCCS Pavia | Italy | Marco Zecca |
| Azienda Ospedialiera di Padova (AOP) | Italy | Gianni Bisogno |
| AziendaOspedaliera Universitaria Senese | Italy | Alessandra Renieri |
| Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino- S.C. Oncoematologia Pediatrica e Centro Trapianti, Presidio Ospedale Infantile regina Margherita | Italy | Franca Fagioli |
| Azienda Ospedaliera S. Maria della Misericordia di Perugia | Italy | Christina Mecucci |
| Fondazione IRCCS Istituto Neurologico Carlo Besta di Milano | Italy | Francesco DiMeco |
| Fondazione Policlinico Universitario A. Gemelli IRCCS – Roma | Italy | Antonio Ruggiero |
| Fondazione IRCCS Istituto Nazionale dei Tumori | Italy | Maura Massimino |
| Healthcare Provider | Member State | Contact(s) |
| Children´s Clinical University Hospital, Riga | Latvia | Zanna Kovalova |
| Healthcare Provider | Member State | Contact(s) |
| Vilnius University Hospital Santariskiu Klinikos | Lithuania | Jelena Rascon |
| Healthcare Provider | Member State | Contact(s) |
| Stichting VU-VUmc | Netherlands | Anne Moll |
| EMC (All functions have been taken over by Princess Máxima Centre) | Netherlands | Michel Zwaan |
| Princess Maxima Center | Netherlands | Peter Hoogerbrugge |
| Healthcare Provider | Member State | Contact(s) |
| Oslo University Hospital | Norway | Bernward Zeller |
| Healthcare Provider | Member State | Contact(s) |
| T. Marciniak Lower Silesian Specialist Hospital- Emergency Hospital (Wroclaw) | Poland | Jan Godzinski |
| University Children Hospital in Lublin (UCHL) | Poland | Jerzy Kowalzcyk |
| University Clinical Center Gdansk | Poland | Ewa Bien |
| University Children’s Hospital of Cracow | Poland | Walentyna Balwierz |
| Instytut “Pomnik-Centrum Zdrowia Dziecka” | Poland | Bożenna Dembowska-Bagińska |
| Instytut Matki i Dziecka (Mother and Child Institute) | Poland | Anna Raciborska |
| Healthcare Provider | Member State | Contact(s) |
| Centro Hospitalar e Universitario de Coimbra | Portugal | Alice Carvalho |
| Instituto Português de Onclogia de Lisboa Francisco Gentil, EPE | Portugal | Filomena Pereira |
| Instituto Português de Oncologia do Porto Francisco Gentil, EPE (+ Centro Hospitalar Universitário São João) | Portugal | Ana Maia Ferreira |
| Healthcare Provider | Member State | Contact(s) |
| National Institute of Children’s Diseases | Slovakia | Alexandra Kolenova |
| Healthcare Provider | Member State | Contact(s) |
| University Medical Centre Ljubljana | Slovenia | Janez Jazbek, Marco Kavcic |
| Healthcare Provider | Member State | Contact(s) |
| Hospital Sant Joan de Déu, Barcelona | Spain | Ofelia Cruz, Guillermo Chantada |
| Hospital Universitari Vall d´ Hebron | Spain | Soledad Galego, Jose Sanchez de Toledo |
| Hospital Universitario y Politécnico La Fe | Spain | Adela Canete, Antonio Juan Ribelles |
| Complejo Hospitalario regional Virgen Del Rocio (Sevilla) | Spain | Moniteau Sophie, Ana Fernandez-Tejeiro Alvarez |
| Hospital Universitario La Paz | Spain | Antonio Pérez Martínez |
| Hospital Universitario Virgen Macarena | Spain | Ana Fernandez-Teijeiro |
| Healthcare Provider | Member State | Contact(s) |
| Karolinska University Hospital | Sweden | Cecilia Petersen, Niklas Pal |
| Skâne University Hospital | Sweden | Lars Hjorth, Helena Linge |
| Sahlgrenska University Hospital | Sweden | Gustaf Österlundh |
AFFILIATED PARTNERS
| Healthcare Provider | Member State | Contact(s) |
| Pediatric Oncohematology Department, University Hospital “Tsaritsa Johanna-ISUL” | Bulgaria | Boiko Korukov (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Division of Pediatric Hematology and Oncology, Centre of Reference for Pediatric Hematology and Oncology Ministry of Health Republic of Croatia, Department of Pediatrics, University Hospital Center Zagreb, University of Zagreb, School of Medicine | Croatia | Ante Ćorušić (CEO of the HCP) |
| Children’s University Hospital Zagreb, Division of Paediatrics Oncology and Haematology | Croatia | Goran Roić (CEO of the HCP) |
| Division for Pediatric Haematology and Oncology, University Department of Pediatrics, University Hospital Centre Rijeka, Croatia | Croatia | Alen Ružić |
| Healthcare Provider | Member State | Contact(s) |
| Pediatric Oncology/Hematology Clinic Archbishop Makarios III Hospital | Cyprus | Kyriakos Georgiou (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Tallin Children’s Hospital | Estonia | Katrin Luts (CEO of HCP) |
| Tartu University Hospital | Estonia | Priit Eelmäe (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Centre Hospitalier du Luxembourg | Luxembourg | Romani Nati (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Mater Dei Hospital | Malta | Ivan Falzon (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Institutul Oncologic “Prof. Dr. Alexandru Trestioreanu” Bucuresti | Romania | Lidia Anca Kajanto (CEO of the HCP) |
| Institutul Clinic Fundeni Bucuresti | Romania | Carmen Orban |
| Healthcare Provider | Member State | Contact(s) |
| Pediatric Oncohematology Department, University Hospital “Tsaritsa Johanna-ISUL” | Bulgaria | Boiko Korukov (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Division of Pediatric Hematology and Oncology, Centre of Reference for Pediatric Hematology and Oncology Ministry of Health Republic of Croatia, Department of Pediatrics, University Hospital Center Zagreb, University of Zagreb, School of Medicine | Croatia | Ante Ćorušić (CEO of the HCP) |
| Children’s University Hospital Zagreb, Division of Paediatrics Oncology and Haematology | Croatia | Goran Roić (CEO of the HCP) |
| Division for Pediatric Haematology and Oncology, University Department of Pediatrics, University Hospital Centre Rijeka, Croatia | Croatia | Alen Ružić |
| Healthcare Provider | Member State | Contact(s) |
| Pediatric Oncology/Hematology Clinic Archbishop Makarios III Hospital | Cyprus | Kyriakos Georgiou (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Tallin Children’s Hospital | Estonia | Katrin Luts (CEO of HCP) |
| Tartu University Hospital | Estonia | Priit Eelmäe (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Centre Hospitalier du Luxembourg | Luxembourg | Romani Nati (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Mater Dei Hospital | Malta | Ivan Falzon (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Institutul Oncologic “Prof. Dr. Alexandru Trestioreanu” Bucuresti | Romania | Lidia Anca Kajanto (CEO of the HCP) |
| Institutul Clinic Fundeni Bucuresti | Romania | Carmen Orban |
| Healthcare Provider | Member State | Contact(s) |
| Pediatric Oncohematology Department, University Hospital “Tsaritsa Johanna-ISUL” | Bulgaria | Boiko Korukov (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Division of Pediatric Hematology and Oncology, Centre of Reference for Pediatric Hematology and Oncology Ministry of Health Republic of Croatia, Department of Pediatrics, University Hospital Center Zagreb, University of Zagreb, School of Medicine | Croatia | Ante Ćorušić (CEO of the HCP) |
| Children’s University Hospital Zagreb, Division of Paediatrics Oncology and Haematology | Croatia | Goran Roić (CEO of the HCP) |
| Division for Pediatric Haematology and Oncology, University Department of Pediatrics, University Hospital Centre Rijeka, Croatia | Croatia | Alen Ružić |
| Healthcare Provider | Member State | Contact(s) |
| Pediatric Oncology/Hematology Clinic Archbishop Makarios III Hospital | Cyprus | Kyriakos Georgiou (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Tallin Children’s Hospital | Estonia | Katrin Luts (CEO of HCP) |
| Tartu University Hospital | Estonia | Priit Eelmäe (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Centre Hospitalier du Luxembourg | Luxembourg | Romani Nati (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Mater Dei Hospital | Malta | Ivan Falzon (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Institutul Oncologic “Prof. Dr. Alexandru Trestioreanu” Bucuresti | Romania | Lidia Anca Kajanto (CEO of the HCP) |
| Institutul Clinic Fundeni Bucuresti | Romania | Carmen Orban |
| Healthcare Provider | Member State | Contact(s) |
| Pediatric Oncohematology Department, University Hospital “Tsaritsa Johanna-ISUL” | Bulgaria | Boiko Korukov (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Division of Pediatric Hematology and Oncology, Centre of Reference for Pediatric Hematology and Oncology Ministry of Health Republic of Croatia, Department of Pediatrics, University Hospital Center Zagreb, University of Zagreb, School of Medicine | Croatia | Ante Ćorušić (CEO of the HCP) |
| Children’s University Hospital Zagreb, Division of Paediatrics Oncology and Haematology | Croatia | Goran Roić (CEO of the HCP) |
| Division for Pediatric Haematology and Oncology, University Department of Pediatrics, University Hospital Centre Rijeka, Croatia | Croatia | Alen Ružić |
| Healthcare Provider | Member State | Contact(s) |
| Pediatric Oncology/Hematology Clinic Archbishop Makarios III Hospital | Cyprus | Kyriakos Georgiou (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Tallin Children’s Hospital | Estonia | Katrin Luts (CEO of HCP) |
| Tartu University Hospital | Estonia | Priit Eelmäe (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Centre Hospitalier du Luxembourg | Luxembourg | Romani Nati (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Mater Dei Hospital | Malta | Ivan Falzon (CEO of the HCP) |
| Healthcare Provider | Member State | Contact(s) |
| Institutul Oncologic “Prof. Dr. Alexandru Trestioreanu” Bucuresti | Romania | Lidia Anca Kajanto (CEO of the HCP) |
| Institutul Clinic Fundeni Bucuresti | Romania | Carmen Orban |
PATIENTS AND PARENTS WITHIN THE ERN PAEDCAN: CCI NATIONAL CONTACT POINTS
| Healthcare Provider / Organisation | Country | Website | |
| You are a sunflower | Albania | www.youareasunflower.org | official@youareasunflower.org |
| Healthcare Provider / Organisation | Member State | Website | |
| Österreichische Kinder-Krebs-Hilfe & Survivors Austria (Hannah Gsell) |
Austria | www.kinderkrebshilfe.at www.survivors.at | oesterreichische@kinderkrebshilfe.at office@survivors-austria.at |
| Healthcare Provider / Organisation | Country | Website | |
| KickCancer (Delphine Heenen) | Belgium | www.kickcancer.org | info@kickcancer.org |
| Healthcare Provider / Organisation | Country | Website | |
| Association “Heart for kids with cancer” (Udruženje “Srce za djecu koja boluju od raka”, Harun Sabic, Lejla Kameric) | Bosnia & Herzegovina | www.srcezadjecu.ba | l.kameric@ccieurope.eu harun.sabic@srcezadjecu.ba |
| Healthcare Provider / Organisation | Country | Website | |
| Association Children with Oncohematologic Diseases (Theodora Armenkova) | Bulgaria | www.decaohz.org | armenkova@gmail.com ohz_deca@abv.bg |
| Healthcare Provider / Organisation | Country | Website | |
| Firefly – Association for helping children and families facing malignant diseases (Krijesnica – Udruga za pomoć djeci i obiteljima suočenim s malignim bolestima, Mihael Severinac) | Croatia | www.krijesnica.hr | krijesnica@krijesnica.hr |
| Healthcare Provider / Organisation | Country | Website | |
| Familier med kræftramte børn (FMKB, Tommy Brøgger) |
Denmark | www.fmkb.dk | info@fmkb.dk |
| Healthcare Provider / Organisation | Country | Website | |
| Estonian Association of Parents of Children with Cancer (Kaili Lellep) | Estonia | www.vahilapsed.ee | info@vahilapsed.ee |
| Healthcare Provider / Organisation | Country | Website | Email(s) |
| SYLVA Ms Marika Aro (CEO) Dr Antti Karjalainen (Research) |
Finland | www.sylva.fi | sylva@sylva.fi
Antti.Karjalainen@sylva.fi |
| Healthcare Provider / Organisation | Country | Website | |
| UNAPECLE | France | www.unapecle.net | contact@unapecle.net |
| Healthcare Provider / Organisation | Country | Website | |
| Monk Andrew’s Charity Foundation (CCI members from 2018, Miledi (Tinatin) Chkhvimiani) | Georgia | www.monkandrew.ge | monkandrew.fund@gmail.com |
| Healthcare Provider / Organisation | Member State | Website | |
| Deutsche Kinderkrebsstiftung | Germany | www.kinderkrebsstiftung.de | hannowsky@kinderkrebsstiftung.de info@kinderkrebsstiftung.de |
| Healthcare Provider / Organisation | Member State | Website | |
| Floga – Parents association of Children with Cancer (Georgia Kokkinou) | Greece | www.floga.org.gr | floga@floga.org.gr |
| Healthcare Provider / Organisation | Country | Website | |
| Styrktarfélag Krabbameinssjúkra Barna (The Icelandic Childhood Cancer Parent Organization) | Iceland | www.skb.is | skb@skb.is |
| Healthcare Provider / Organisation | Country | Website | |
| Childhood Cancer Ireland | Ireland | www.childhoodcancer.ie | info@childhoodcancer.ie |
| Healthcare Provider / Organisation | Country | Website | |
| Federazione Italiana associazioni Genitori Oncoematologia Pediatrica (FIAGOP) Angelo Ricci |
Italy | www.fiagop.it | presidente@fiagop.it info@fiagop.it |
| Healthcare Provider / Organisation | Country | Website | |
| Paguoda | Lithuania | www.paguoda.org | info@paguoda.lt daiva.zaromskiene@gmail.com |
| Healthcare Provider / Organisation | Country | Website | |
| Fondatioun Kriioncobskrank Kanner (Anne Goeres) | Luxembourg | www.fondatioun.lu | contact@fondatioun.lu |
| Healthcare Provider / Organisation | Country | Website | |
| SANO | Macedonia | www.sano.org.mk | marijatasev02@gmail.com |
| Healthcare Provider / Organisation | Country | Website | |
| FENIX MONTENEGRO’ NGO’ association of parents of children with child’s cancer (Dijana Stojanović) | Montenegro | www.fenixnvo.me | fenix.crnagora@gmail.com |
| Healthcare Provider / Organisation | Country | Website(s) | |
| Vereniging Kinderkanker Nederland, VOKK (Jaap den Hartogh) |
Netherlands | www.kinderkankernederland.nl www.koesterkind.nl (palliative) www.kanjerketting.nl www.vox.nl (survivors) |
info@vokk.nl |
| Healthcare Provider / Organisation | Country | Website | |
| Barnekreftforeningen (The Norwegian Childhood Cancer Organization) |
Norway | www.barnekreftforeningen.no | sekretariatet@barnekreftforeningen.no; |
| Healthcare Provider / Organisation | Country | Website(s) | |
| ISKIERKA Foundation (Magda Stajno) | Poland | www.fundacjaiskierka.pl | m.stajno@fundacjaiskierka.pl |
| Healthcare Provider / Organisation | Country | Website | |
| Acreditar – Association of Parents and Friends of Children with Cancer (Tiago Pinta da Costa) | Portugal | www.acreditar.org.pt | acreditar@acreditar.pt |
| Healthcare Provider / Organisation | Country | Website | |
| Daruieste Aripi Association (Give Wings Association, Alina Pătrăhău) | Romania | https://www.daruiestearipi.ro/en/ | alina@daruiestearipi.ro |
| Healthcare Provider / Organisation | Country | Website | Email(s) |
| Children and parents against cancer (CAPAC, Ekaterina Kiseleva)) | Russia | www.capac.ru | childrencancer@mail.ru childrencancer@capac.ru info@capac.ru |
| Healthcare Provider / Organisation | Country | Website | |
| “ZVONČICA” Childhood Cancer Parent Organization | Serbia | www.zvoncica.org.rs | udruzenjezvoncica@gmail.com |
| Healthcare Provider / Organisation | Country | Website | |
| SMILE, n.o., POMÁHAME S ÚSMEVOM (Ludmila Hurajova) |
Slovakia | www.lifesupport.sk | info@lifesupport.sk |
| Healthcare Provider / Organisation | Country | Website | |
| JONATAN PRIJATELJ, Društvo staršev otrok z rakom (Tatjana Kruder) |
Slovenia | N/A | tatjana.kruder@siol.net |
| Healthcare Provider / Organisation | Country | Website | |
| Federación Española de Padres del Niños con Cáncer (Luisa Basset) | Spain | www.cancerinfantil.org | LBASSET@mes.upv.es |
| Healthcare Provider / Organisation | Country | Website | Email(s) |
| Barncancerfonden | Sweden | www.barncancerfonden.se | info@barncancerfonden.se thorbjorn.larsson@barncancerfonden.se monica.ohlson@barncancerfonden.se |
| Healthcare Provider / Organisation | Country | Website(s) | |
|
Switzerland | www.zoe4life.org www.kinderkrebs-schweiz.ch | nicole@zoe4life.org info@kinderkrebs-schweiz.ch |
| Healthcare Provider / Organisation | Country | Contact(s) | Email(s) |
| Tabletochki Charity Foundation (Yuliya Nogovitsyna) |
Ukraine | www.tabletochki.org/en | y.gerbut@tabletochki.org info@tabletochki.org y.nogovitsyna@tabletochki.org |
| Healthcare Provider / Organisation | Country | Website | Email(s) |
| Childhood Cancer Parents Alliance (CCPA) | UK | www.ccpa.org.uk | R.Olley@ccpa.org.uk
|
