Coordinator:

ERN PaedCan Project Management Team
Project Coordinator Professor Ruth Ladenstein
Children’s Cancer Research Institute – St. Anna Kinderkrebsforschung
Vienna, Austria

Full Members:

List of healthcare providers that acquired membership of the ERN-PAEDCAN

 

Healthcare Provider Name  Member State  Contact Point
St. Anna Children´s Hospital & Children´s Cancer Research Institute Austria (ERN-Coordinator)
Ghent University Hospital (Pediatric Hematology-Oncology & Stem Cell Transplantation, Universitair Ziekenhuis) Belgium Genevieve Laureay, Melissa Bol
Hôpital Universiataire des Enfants Reine Fabiola Belgium Alina Ferster (Alice),
UZ Leuven Belgium Anne Uyttebroeck
Cliniques universitaires Saint-Luc Belgium Bénédicte Brichard
University Hospital Brno Czech Republic Jaroslav Sterba;
University Hospital Motol, Prague Czech Republic Jan Stary
Copenhagen University Hospital, Rigshospitalet Denmark Karsten Nysom, Schmiegelow
Aarhus Universitets Hospital Denmark Henrik Hasle
Kuopio University Hospital Finland Kaisa Vepsalainen, Pekka Riikonen
Tampere University Hospital Finland Olli Lohi, Mikko Arola
Turku University Hospital, The Hospital District of Southwest Finland Finland Päivi Maria Lätheenmaki
ERN PaedCanHUSOY (HUS Helsinki University Hospital + Oulu University Hospital (OYS)) Finland Jukka Kanerva
Hôpital Bicetre France Branchereau Sophie, Isabelle Fernandez
Hôpital Trousseau France Guy Leverger, Sabine Irtan,
Hôpital Universitaire Necker- Enfants malades France Christophe Chardot, Sabine Sarnacki
Institut Curie France Francois Doz
Institut d´hematologie et d´oncologie pédiatrique (IHOPE) France Christoph Bergeron, Jean Yves Blay
Institut Gustave Roussy France Dominique Valteau-Couanet, Gilles Vassal, Valerie Marechal
Fondation Ophtalmologique Adolphe de Rothschild France Gillaume le Henanff, Julien Gottsmann
Hannover Medical School Germany Brigitte Schlegelberger
Dr von Hauner Children´s Hospital, University Hospital Munich Germany Jochen Hubertus
Charité Universitätsmedizin Berlin Germany Angelika Eggert
Christian-Albrechts-Universität zu Kiel (CAU) Germany Martin Schrappe
Klinikum Dortmund GmbH Germany Schneider Dominik
Klinikum Stuttgart-Olgahospital Germany Stefan Bielack
University Children´s Hospital Tübingen Germany Ines Brecht
University Medical Center Freiburg Germany Silvia Rathmann
University Hospital Gießen- Marburg Germany Dieter Körholz
University Hospital Bonn Germany Gabriele Calaminus
Universitätsklinikum Erlangen Germany Axel Karow
Universitätsklinikum Essen Germany Uta Dirksen
Universitätsklinikum Augsburg Germany Michael Frühwald
Universitätsklinikum Frankfurt Germany Thomas Lehrnbecher
Klinkum rechts der Isar der Technischen Universität München und München Klinik Schwabing Germany Stefan Burdach
European Medical School Oldenburg – Groningen Germany Hermann L. Müller
Universitätsklinikum Hamburg-Eppendorf Germany Stefan Rutkowski
Universitätsklinikum Schleswig-Holstein Germany Thorsten Langer
Universitätsklinikum Aachen Germany Udo Kontny
Universitätsklinikum Düsseldorf Germany Arndt Borkhardt
“Aghia Sophia” Children’s Hospital Greece Sophia Polychronopoulou
Semmelweis University Hungary Miklos Garami
Cental Hospital of Southern Pest National Institute of Hematology and Infectious Diseases Hungary Gergely Kriván
Children’s Health Ireland Ireland Cormac Owens
Department of Pediatrics-University of Milano-Bicocca/Fundation MBBM, at San Gerardo Hospital, Monza Italy Andrea Biondi,
IRCCS Istituto Giannina Gaslini Italy Riccardo Haupt
Meyer Children´s Hospital Florence Italy Claudio Favre, Camilla Rosa
Ospedale Pediatrico Bambino Gesú Italy Franco Locatelli, Angela Mastronuzzi
Policlinico San Matteo, Fondazione IRCCS Pavia Italy Marco Zecca
Azienda Ospedialiera di Padova (AOP) Italy Gianni Bisogno
AziendaOspedaliera Universitaria Senese Italy Alessandra Renieri
Azienda Ospedaliero-Universitaria Città della Salute e della Scienza di Torino- S.C. Oncoematologia Pediatrica e Centro Trapianti, Presidio Ospedale Infantile regina Margherita Italy Franca Fagioli
Azienda Ospedaliera S. Maria della Misericordia di Perugia Italy Christina Mecucci
Fondazione IRCCS Istituto Neurologico Carlo Besta di Milano Italy Francesco DiMeco
Fondazione Policlinico Universitario A. Gemelli IRCCS – Roma Italy Antonio Ruggiero
Fondazione IRCCS Istituto Nazionale dei Tumori Italy Maura Massimino
Children´s Clinical University Hospital, Riga Latvia Zanna Kovalova,
Vilnius University Hospital Santariskiu Klinikos Lithuania Jelena Rascon
Stichting VU-VUmc Netherlands Anne Moll
EMC (All functions have been taken over by Princess Máxima Centre) Netherlands Michel Zwaan
Princess Maxima Center Netherlands Peter Hoogerbrugge
Oslo University Hospital Norway Bernward Zeller
T. Marciniak Lower Silesian Specialist Hospital- Emergency Hospital (Wroclaw) Poland Jan Godzinski
University Children Hospital in Lublin (UCHL) Poland Jerzy Kowalzcyk
University Clinical Center Gdansk Poland Stachowics-Stencel, Ewa Bien
University Children’s Hospital of Cracow Poland Walentyna Balwierz
Instytut “Pomnik-Centrum Zdrowia Dziecka” Poland Bożenna Dembowska-Bagińska
Instytut Matki i Dziecka (Mother and Child Institute) Poland Anna Raciborska
Centro Hospitalar e Universitario de Coimbra Portugal Alice Carvalho
Instituto Português de Onclogia de Lisboa Francisco Gentil, EPE Portugal Filomena Pereira
Instituto Português de Oncologia do Porto Francisco Gentil, EPE (+ Centro Hospitalar Universitário São João) Portugal Ana Maia Ferreira
National Institute of Children’s Diseases Slovakia Alexandra Kolenova
University Medical Centre Ljubljana Slovenia Janez Jazbek, Marco Kavcic
Hospital Sant Joan de Déu, Barcelona Spain Ofelia Cruz,  Guillermo Chantada
Hospital Universitari Vall d´ Hebron Spain Soledad Galego, Jose Sanchez de Toledo
Hospital Universitario y Politécnico La Fe Spain Adela Canete, Antonio Juan Ribelles
Complejo Hospitalario regional Virgen Del Rocio (Sevilla) Spain Moniteau Sophie, Ana Fernandez-Tejeiro Alvarez,
Hospital Universitario La Paz Spain Antonio Pérez Martínez
Hospital Universitario Virgen Macarena Spain Ana Fernandez-Teijeiro
Karolinska University Hospital Sweden Cecilia Petersen, Niklas Pal,
Skâne University Hospital Sweden Lars Hjorth, Helena Linge
Sahlgrenska University Hospital Sweden Gustaf Österlundh

Affiliated Partners

Centre Country Contact Person(s)
Pediatric Oncohematology Department, University Hospital “Tsaritsa Johanna-ISUL” Bulgaria Boiko Korukov (CEO of the HCP)
Dobrin Konstantinov (ERN rep., Head of the Ped.Oncohem.Dept.)
Division of Pediatric Hematology and Oncology,  Centre of Reference for Pediatric Hematology and Oncology Ministry of Health Republic of Croatia, Department of Pediatrics, University Hospital Center Zagreb, University of Zagreb, School of Medicine Croatia Ante Ćorušić (CEO of the HCP)
Ernest Bilić (ERN rep.)
Children’s University Hospital Zagreb, Division of Paediatrics Oncology and Haematology Croatia Goran Roić (CEO of the HCP)
Jasminka Stepan Giljević (ERN rep.)
DIVISION FOR PEDIATRIC HAEMATOLOGY AND ONCOLOGY, UNIVERSITY DEPARTMENT OF PEDIATRICS, UNIVERSITY HOSPITAL CENTRE RIJEKA, CROATIA Croatia Davor Štimac,
Jelena Roganović
Pediatric Oncology/Hematology Clinic Archbishop Makarios III Hospital Cyprus Kyriakos Georgiou (CEO of the HCP)
Loizos Loizou (ERN rep.)
Tallin Children’s Hospital Estonia Katrin Luts (CEO of HCP);
Kadri Saks (ERN repr.)
Tartu University Hospital Estonia Priit Eelmäe (CEO of the HCP)
Lenne-Triin Kõrgvee (ERN rep.)
Centre Hospitalier du Luxembourg Luxembourg Romani Nati (CEO of the HCP)
Martine Goergen (ERN rep.)
Mater Dei Hospital Malta Ivan Falzon (CEO of the HCP)
James Clark (ERN rep.)
Institutul Oncologic “Prof. Dr. Alexandru Trestioreanu” Bucuresti Romania Lidia Anca Kajanto (CEO of the HCP)
Monica Desiree Dragomir (ERN rep.)
Institutul Clinic Fundeni Bucuresti Romania Carmen Orban
Anca Colita

 

Patients and Parents within the ERN PaedCan: CCI National contact points

 

Organization  Country Name E-Mail
CCI Europe AUSTRIA Anita Kienesberger a.kienesberger@ccieurope.eu
KickCancer BELGIUM Delphine Heenen info@kickcancer.org

delphine@kickcancer.org

Association “Heart for kids with cancer” (Udruženje “Srce za djecu koja boluju od raka”) BOSNIA & HERZEGOVINA Lejla Kamerić
Harun Šabić
l.kameric@ccieurope.eu
harun.sabic@srcezadjecu.ba
Association Children with Oncohematologic Diseases BULGARIA Theodora Armenkova armenkova@gmail.com
ohz_deca@abv.bg
Firefly – Association for helping children and families facing malignant diseases (Krijesnica – Udruga za pomoć djeci i obiteljima suočenim s malignim bolestima) CROATIA Mihael Severinac mihael@krijesnica.hr

 

Familier med kræftramte børn (FMKB) DENMARK Tommy Brøgger info@fmkb.dk
Estonian Association of Parents of Children with Cancer

 

 

ESTONIA Kaili Lellep info@vahilapsed.ee
SYLVA FINLAND Ms Marika Aro (CEO)

Dr Antti Karjalainen (Research)

sylva@sylva.fi
Marika.Aro@sylva.fi
Antti.Karjalainen@sylva.fi
UNAPECLE FRANCE Frédéric Arnold contact@unapecle.net
Monk Andrew’s Charity Foundation (CCI members from 2018) GEORGIA Miledi (Tinatin) Chkhvimiani monkandrew.fund@gmail.com
Deutsche Kinderkrebsstiftung GERMANY Ria Kortum r.kortum@kinderkrebsstiftung.de
Floga – Parents association of Children with Cancer GREECE Georgia Kokkinou floga@floga.org.gr
Childhood Cancer Foundation (CCF (Light it up Gold)) IRELAND  Mary Claire Rennick info@childhoodcancer.ie
Maryclaire.rennick@childhoodcancer.ie
Federazione Italiana associazioni Genitori Oncoematologia
Pediatrica (FIAGOP)
ITALY Angelo Ricci presidente@fiagop.it
info@fiagop.it
Fondatioun Kriioncobskrank Kanner LUXEMBOURG Anne Goeres contact@fondatioun.lu
FENIX MONTENEGRO’ NGO’ association of parents of children with child’s cancer MONTENEGRO Dijana Stojanović fenix.crnagora@gmail.com
Vereniging Kinder Kanker Nederland NETHERLANDS Jaap den Hartogh info@kinderkankernederland.nl
ISKIERKA Foundation POLAND Magda Stajno m.stajno@fundacjaiskierka.pl
Acreditar – Association of Parents and Friends of Children with Cancer PORTUGAL Telma Sousa ts@acreditar.pt
Daruieste Aripi Association (Give Wings Association) ROMANIA Alina Pătrăhău alina@daruiestearipi.ro
Children and parents against cancer (CAPAC) RUSSIA Ekaterina Kiseleva katerinakiss@mail.ru

info@capac.ru

“ZVONČICA” Childhood Cancer Parent Organization SERBIA Irina Ban udruzenjezvoncica@gmail.com
SMILE, n.o., POMÁHAME S ÚSMEVOM SLOVAKIA Ludmila Hurajova hurajova@lifesupport.sk
JONATAN PRIJATELJ, Društvo staršev otrok z rakom SLOVENIA Tatjana Kruder tatjana.kruder@siol.net
Federación Española de Padres del Niños con Cáncer SPAIN Luisa Basset LBASSET@mes.upv.es
Barncancerfonden SWEDEN Holly Wattwil holly.wattwil@gmail.com
Zoé4life SWITZERLAND Nicole Scobie nicole@zoe4life.org
Tabletochki Charity Foundation UKRAINE Yuliya Nogovitsyna info@tabletochki.org
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