Rare Disease Day – EU Booklet
Ahead of the Rare Disease Day, the European Commission will publish a booklet celebrating the dedication and expertise of the European Reference Networks that make a tangible difference to the lives of patients with rare diseases and their families.
Two new factsheets will also be available on how the European Commission works on Rare Diseases and the European Reference Networks, and on the EU delivering on rare diseases for patients and their families.
Please find below further details for your information:
1. Factsheet: “EU delivering on rare diseases for patients and families”, 4 pages. Available in EN/FR/DE/IT on the ERNs website as from Monday 24th
2. Factsheet: “How the European Commission works on Rare Diseases and the European Reference Networks (ERNs)”, 3 pages. Available in EN/FR/DE/IT on the ERNs website as from Monday 24th
3. Booklet: “European Reference Networks. A success story for patients living with a rare disease”, 64 pages. Available in EN on the ERNs website as from Monday 24th. Other languages will be made available in the following weeks
4. Health and Food Safety Newsletter: Q&A on European Reference Networks and cross-border healthcare, by Antonio Parenti, DG SANTE Director for Public Health, Cancer and Health Security. Published on Friday 28th in all EU languages and available after that date on the Newsletter’s repository.
5. Posts: to mark the occasion, on LinkedIn and X accounts, as well as on the shared Instagram account that DG SANTE has with the Executive Agencies.
