Open Letter from ERNs to EU institutions and EU Member States’ governments

The ERN PaedCan has co-signed an open letter in which the ERN Network Coordinators and people living with a rare disease across Europe have asked Ursula von der Leyen (President of the European Commission), Roberta Metsola (President of the European Parliament) and the Heads of Governments of EU Member States to stand by the ERNs and to uphold their commitment to enable long-lasting impact in people’s lives and, fundamentally, give all people living with a rare or complex condition in Europe the same opportunities to access timely and adequate specialised healthcare. Read the full letter here.