The following national contact points of parents’/survivors’ organizations are the link between CCI Europe and the local organizations in each country. CCI Europe is the link between the coordinator of the network and the national contact points.

 

 

Organization  Country Name E-Mail
Österreichische Kinder-Krebs-Hilfe AUSTRIA Anita Kienesberger a.kienesberger@kinderkrebshilfe.at
KickCancer BELGIUM Delphine Heenen info@kickcancer.org

delphine@kickcancer.org

Association “Heart for kids with cancer” (Udruženje “Srce za djecu koja boluju od raka”) BOSNIA & HERZEGOVINA Lejla Kamerić
Harun Šabić
lejla.kameric@gmail.com
harun.sabic@srcezadjecu.ba
Association Children with Oncohematologic Diseases BULGARIA Theodora Armenkova armenkova@gmail.com
ohz_deca@abv.bg
Firefly – Association for helping children and families facing malignant diseases (Krijesnica – Udruga za pomoć djeci i obiteljima suočenim s malignim bolestima) CROATIA Mihael Severinac mihael@krijesnica.hr

 

Familier med kræftramte børn (FMKB) DENMARK Tommy Brøgger info@fmkb.dk
Estonian Association of Parents of Children with Cancer

 

 

ESTONIA Kaili Lellep info@vahilapsed.ee
SYLVA FINLAND Ms Marika Aro (CEO)

Dr Antti Karjalainen (Research)

sylva@sylva.fi
Marika.Aro@sylva.fi
Antti.Karjalainen@sylva.fi
UNAPECLE FRANCE Frédéric Arnold contact@unapecle.net
Monk Andrew’s Charity Foundation (CCI members from 2018) GEORGIA Miledi (Tinatin) Chkhvimiani monkandrew.fund@gmail.com
Deutsche Kinderkrebsstiftung GERMANY Ria Kortum r.kortum@kinderkrebsstiftung.de
Floga – Parents association of Children with Cancer GREECE Georgia Kokkinou floga@floga.org.gr
Childhood Cancer Foundation (CCF (Light it up Gold)) IRELAND  Mary Claire Rennick info@childhoodcancer.ie
Maryclaire.rennick@childhoodcancer.ie
Federazione Italiana associazioni Genitori Oncoematologia
Pediatrica (FIAGOP)
ITALY Angelo Ricci presidente@fiagop.it
info@fiagop.it
Fondatioun Kriioncobskrank Kanner LUXEMBOURG Anne Goeres contact@fondatioun.lu
FENIX MONTENEGRO’ NGO’ association of parents of children with child’s cancer MONTENEGRO Dijana Stojanović fenix.crnagora@gmail.com
VOKK NETHERLANDS Jaap den Hartogh bureau@vokk.nl
ISKIERKA Foundation POLAND Magda Stajno m.stajno@fundacjaiskierka.pl
Acreditar – Association of Parents and Friends of Children with Cancer PORTUGAL Telma Sousa ts@acreditar.pt
Daruieste Aripi Association (Give Wings Association) ROMANIA Alina Pătrăhău alina@daruiestearipi.ro
Children and parents against cancer (CAPAC) RUSSIA Ekaterina Kiseleva katerinakiss@mail.ru

info@capac.ru

“ZVONČICA” Childhood Cancer Parent Organization SERBIA Irina Ban udruzenjezvoncica@gmail.com
SMILE, n.o., POMÁHAME S ÚSMEVOM SLOVAKIA Ludmila Hurajova hurajova@lifesupport.sk
JONATAN PRIJATELJ, Društvo staršev otrok z rakom SLOVENIA Tatjana Kruder tatjana.kruder@siol.net
Federación Española de Padres del Niños con Cáncer SPAIN Luisa Basset LBASSET@mes.upv.es
Barncancerfonden SWEDEN Holly Wattwil holly.wattwil@gmail.com
Zoé4life SWITZERLAND Nicole Scobie nicole@zoe4life.org
Tabletochki Charity Foundation UKRAINE Yuliya Nogovitsyna info@tabletochki.org
Childhood Cancer Parents Alliance (CCPA) UK Sam Schoolar ro@ccpa.org.uk
sam@shinealightss.org.uk
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