EJP RD Training Workshop: “Genetic Biobanks for Rare Disease Research”
University Medical Centre Groningen (UMCG) and Fondazione Telethon (FTELE) along with other EJP RD partners are organizing an EJP RD Training [...]
Third Meeting of Children’s Hospital of Philadelphia (CHOP) with Aghia Sophia Children’s Hospital of Athens (Hybrid)
This meeting will take place on 20-21 May 2022 at Royal Olympic Hotel in Athens. The meeting will be held in hybrid format and registration for on-line participation does not have a deadline. The [...]
#ERNcare4Ua – ERN’s assistance in the Ukrainian crisis
All 24 European Reference Networks (ERNs) have launched a joint dedicated website and social media campaign to collect information to help Ukrainian patients with rare diseases for diagnosis, [...]
Share4Rare platform 2021 activities
The Share4Rare platform is a safe space where patients and carers can connect, share knowledge and get involved in scientific research. #S4RMonth 2021 activities: The role of genetics in the [...]
3rd Call is open: ERN RD Training and Support Program
Research Training Workshops The goal of the workshops is to train researchers and clinicians affiliated to ERN- Full Members or – Affiliated Partners in relevant topics on research in rare [...]
Webinars: Most Challenging Cases in Paediatric Oncology
Most Challenging Cases in Paediatric Oncology – You are invited to an Interactive Webinar Series of ERN PaedCan and Young SIOPE We are pleased to invite you to [...]
ESO-SIOPE-ERN PaedCan E-Learning
PAEDIATRIC HAEMATO-ONCOLOGY EMERGENCIES This pathway has been released with the collaboration of SIOP Europe and ERN. You can access all sessions free of charge live or watch recordings on [...]
Invitation: State of the Art Lectures on NGS in Healthcare
We would like to invite you to join two state of the art lectures on NGS in Healthcare, which will be livestreamed on January 26th at 1 p.m. CET, in the context of the INSTAND-NGS4P project, [...]
The ERICA Project
The ERICA Project: joining forces to integrate research and innovation capacity across all 24 European Reference Networks The European Rare disease research Coordination and support Action [...]
