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              University Medical Centre Groningen (UMCG) and Fondazione Telethon (FTELE) along with other EJP RD partners are organizing an EJP RD Training [...]

This meeting will take place on 20-21 May 2022 at Royal Olympic Hotel in Athens. The meeting will be held in hybrid format and registration for on-line participation does not have a deadline. The [...]

All 24 European Reference Networks (ERNs) have launched a joint dedicated website and social media campaign to collect information to help Ukrainian patients with rare diseases for diagnosis, [...]

The Share4Rare platform is a safe space where patients and carers can connect, share knowledge and get involved in scientific research. #S4RMonth 2021 activities: The role of genetics in the [...]

Research Training Workshops The goal of the workshops is to train researchers and clinicians affiliated to ERN- Full  Members or – Affiliated Partners in relevant topics on research in rare [...]

          Most Challenging Cases in Paediatric Oncology – You are invited to an Interactive Webinar Series of ERN PaedCan and Young SIOPE We are pleased to invite you to [...]

PAEDIATRIC HAEMATO-ONCOLOGY EMERGENCIES This pathway has been released with the collaboration of SIOP Europe and ERN. You can access all sessions free of charge live or watch recordings on [...]

We would like to invite you to join two state of the art lectures on NGS in Healthcare, which will be livestreamed on January 26th at 1 p.m. CET, in the context of the INSTAND-NGS4P project, [...]

The ERICA Project: joining forces to integrate research and innovation capacity across all 24 European Reference Networks The European Rare disease research Coordination and support Action [...]

We invite you to join the CME accredited E-Session by the European School Oncology. Title: The Toronto Childhood Cancer Stage Guidelines: practical application Date and time: 19 November 2020, [...]